My son, then age 15, was diagnosed with ewings sarcoma, January 12, 2004. He had a tumor in his pelvis region about the size of a small orange. The cancer had moved to his lungs. After surgery to remove the tumor - which they couldn't do, he had an initial round of chemotherapy. After this round of chemo, we started him on glyconutrients. He then received two more rounds of chemo... all the time faithfully taking the glyconutritional supplements. At this point he had a process called an aphresis (which harvests a patient's own stem cells for a stem cell transplant). This was in March. The doctors wanted to harvest 6 million stem cells per kilo of body weight. The tech that did the process said there was no physical way he could harvest that many stem cells in one day, as he had to go half speed with the process due to a problem with my son's catheter into his artery. That night, the tech called us and sheepishly said they had harvested 12 million stem cells per kilo of body weight. He said he had no answer for it. I figured we'd had a divine intervention! When I spoke with the doctor's assistant from the place we receive the glyconutrients, I was informed that this is one thing the glyconutrients do - help the body producce more stem cells.
After the 6th round of chemo (in June), the surgeons wanted to try and remove what was left of the tumor (it had shrunk to the size of a golf ball). The surgeons - who were the only ones to physically see the tumor- said that the tumor was one with the rectum wall on the first surgery, and they would have to take part of the recturm. When they went in to do surgery, they found that the tumor had pulled away from the rectum and there was a margin on that end. The interesting thing about the surgery was that he had surgery on Friday, and they sent him home on Sunday, as he was doing so well. This happened after 6 rounds of chemo and surgery to a site that was operated on for the second time. He should not have done this well as compromised as his immune system was supposed to be.
After a 7th round of chemo, it was time for the stem cell transplant. This was a hard time, but my son didn't suffer what most kids do. He was in the hospital for 2 weeks. Then they wanted us to hang out in the area for 3-4 more weeks. He would have several check-ups during this time. The doctors told us to expect to have runs to the emergency room due to infection. They also said to come packed to stay at the hospital when he had check-ups, as they had never had a young person NOT have an infection or complication after a transplant. Two weeks after his release from the hospital, they sent us home, because, besides low platelettes, he never had an infection, and he was doing so well.
They gave him several weeks to recover from his transplant before beginning radiation to the tumor site. As radiation progressed, my son started to get the "burn" that so often happens with radiation. We started applying a gel that has glyconutrients in it. The radiation doctor warned us that this burn would get worse. He was surprised when it didn't get worse, but actually got better.
My son was proclaimed in remission around Thanksgiving 2004. This type of cancer (especially when metistatic) doesn't have a reputation for allowing it's victims to remain in remission for a year. So, we waited, and prayed and continued the use of glyconutrients. All of his rechecks in 2005 were uneventful. In December 2005, we had his one year recheck with the bone marrow doctors. They commented that he was doing exceptionally well, and that his immune system was back to normal. Also, his breathing was better than it had been before the transplant.
Now, in December 2006, we had a 2 year recheck. My son continues to be free from cancer and in exceptional health. From all that I have read and from our own experience, we believe that the glyconutrients gave my son a better quality of life going through his treatment, and has helped him remain cancer-free.
Thursday, February 1, 2007
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